Mason was getting his picture taken for his first day of kindergarten when his stomach started hurting. Instead of going to his very first day of school, he was getting his first CT scan. We thought he had appendicitis but found out instead that he had a peach size tumor on his right adrenal gland. He was only 5 years old. That next week, Mason had his first surgery. They laparoscopically removed the tumor and after it was tested we found out it was neuroblastoma. We were told he only had a 1 to 3% chance of the cancer returning. Six months later, scans showed that he was still cancer free. Two months later Mason started having pains in his legs. Then that same pain started in his abdomen. Our family dr. sent him straight to the hospital for another CT scan. It was then we found out that Mason had cancer everywhere. In his bones from the top of his skull to his thighs, it was in his bone marrow, and he had a large tumor that branched off throughout his abdomen and in case several major arteries. His cancer was stage IV. Mason started treatments right away. He went through six rounds of chemo, had an 8 1/2 hour surgery that left a 12 inch scar down his side, he then had seven rounds of painful immunotherapy, then began the vaccine trial at Sloan Kettering. After being NED for 364 days - one day before being cancer free for a whole year - we found out he relapsed. Our world was turned upside down once again. Mason started treatment right away - A combination of chemotherapy and immunotherapy. After for hard rounds, we just found out Mason is NED again! He is now 8 years old. He will still have to finish five more rounds and will continue on with the vaccine trial again. We can only pray this time it stays away.
Walter and Joan Smith
emery inspired a rebellion
She was small but she was fierce.
Emery was only 2 years old when she was diagnosed with cancer, not just cancer but Stage 4 Neuroblastoma with the odds stacked against her from day one.
She fought more bravely than any child ever should, but the available treatments failed her.
Now we fight back. This foundation was created to save and support kids with Neuroblastoma - in memory of Emery.
We must change this.