Caleb was fighting fevers in the beginning of February 2017. Doctors originally thought that Caleb had strep throat or a virus that has been prevalent that winter, causing fevers for more than a week. An antibiotic cured the strep throat, but the fevers continued and Caleb also began to experience severe pain in his back. After an x-ray at Goshen Hospital on February 27, Caleb was called back for a CT scan on his back. On February 28 the family learned that Caleb had a tumor in the adrenal gland above his right kidney. This tumor was causing Caleb’s back pain. The family traveled to Riley Children's Hospital on March 1 to begin tests on the tumor.
Caleb was diagnosed with Stage 4 Neuroblastoma. It is cancer of the nerve tissue and commonly found in children 5 years and younger.
He immediately started chemotherapy and did a total of six rounds over six months. They made the decision to travel to Memorial Sloan Kettering in NYC to avoid more toxic chemotherapy at their home hospital. He has undergone countless procedures, chemotherapy, surgeries, radiation and immunotherapy treatments. He was declared NED (No Evidence of Disease) on March 6, 2018. Due to the aggressiveness of neuroblastoma, treatment must continue even after the cancer is gone.
The day after Christmas 2018, they received the news that Caleb had relapsed. The team of doctors found a new localized spot on the back of his skull, where Neuroblastoma cells were identified. There is no protocol for relapse and treatments are much more intense.
emery inspired a rebellion
She was small but she was fierce.
Emery was only 2 years old when she was diagnosed with cancer, not just cancer but Stage 4 Neuroblastoma with the odds stacked against her from day one.
She fought more bravely than any child ever should, but the available treatments failed her.
Now we fight back. This foundation was created to save and support kids with Neuroblastoma - in memory of Emery.
We must change this.