Taryn was nine years old and battling Stage 4 Neuroblastoma for the second time. He was originally diagnosed back in February 2013 at the age of three. Taryn was able to stay in remission for a few years before it returned making Taryn fight for his life for the second time.
Since May, of 2018 he had undergone a major surgery to replace his jaw bone that had a tumor wrapped around it with part of his leg bone. He went through MIBG treatment to hopefully get the rest of his cancer under control.
So since the mibg treatment we tried and dealt with all the trials, medical politics, and tribulations with a clinical trial that didn't work as well as we'd hoped. And now we are trying another oral med that we hope will knock down some of his disease since his body is riddled with disease mainly behind the eyes and on the skull, thighs and hips, and spots like his arms and more. Very painful.
We were so deeply saddened to find out Taryn passed away in the early morning hours March 30, 2019. He was such a fighter and an inspiration. Our hearts break for his family. No child and no family should ever have to go through this. We are so honored that he was one of our first Team Emery kids. He will be so very missed by his family including his 4 younger brothers.
emery inspired a rebellion
She was small but she was fierce.
Emery was only 2 years old when she was diagnosed with cancer, not just cancer but Stage 4 Neuroblastoma with the odds stacked against her from day one.
She fought more bravely than any child ever should, but the available treatments failed her.
Now we fight back. This foundation was created to save and support kids with Neuroblastoma - in memory of Emery.
We must change this.